[Sussex] Newbie Alert [OT]

[Al Bennett]

Hello

It is very difficult to explain ME to people that haven't had experience of
it, especially why I'm worse after a night's sleep than before I went to bed
and why I can do some things (but pay for it later) and not others.

Interestingly, there was a discussion on the Message Board of one of the ME
charities (ayme.org.uk) which I help to run about how to answer the question
'how are you'.  Suggested answers range from 'fine thanks', 'crap', my
personal favourite being SNAFU (probably best not to put on a Young People's
site!).

Everyone knows a horror story (Angelo), at least with some new funding from
the DOH and a bit more recognition things are looking a little brighter!

I'm dissapointed about the lack of beards, clearly another unfounded
sterotype (ahem: Alan Cox?!)

After a happy few hours with RFCs I found the 'feature' in the HTML specs
that's giving me trouble, consistency obviously not high on the priority
list for them!

Also, welcome Richard, as you know I'm new so I don't have much to say here,
hope to see you at the Moot!  I also found the lug archives by googling,
can't remember what I was looking for now but it's handy to have it in the
google cache, useful stuff in there!

Al


----- Original Message -----
From: "Geoff Teale" <gteale at cmedltd.com>
To: "LUG email list for the Sussex Counties" <sussex at mailman.lug.org.uk>
Sent: Friday, November 21, 2003 9:37 AM
Subject: Re: [Sussex] Newbie Alert [OT]


> On Thu, 2003-11-20 at 19:28, Al Bennett wrote:
> <snippage>
> > Geoff - Very sorry to hear about your wife also having ME, not alot that
can
> > be said that you haven't heard before (speedy recovery etc...).
>
> Same to you Al.
>
> Going to veer OT here just for a second, just 'cause I have a bee in my
> bonnet about this..
>
> One of the big problems for people dealing with ME/CFS sufferers is the
> that it's neither terminal or short term - it's hard to know what to say
> to someone after the first four or five times you ask them how they feel
> and they say "crap".  Another thing is that people underestimate just
> how "crap" they mean.
>
> Sarah works because she would probably go insane sitting at home on her
> own all day (if Sarah was well she'd be the sort of gal that would work
> 20 hour days, it's possibly putting that kind of pressure on herself
> that helped trigger the illness in the first place).
>
> People think because she works that she's OK, but the reality is that
> she goes through an awesome struggle just to get to work.  For the
> benefit of those people who haven't met an ME sufferer I should point
> out that Sarah wakes up today feeling like she's got a combination of
> the worst hang-over you've ever had and a bout of the flu on top.  In
> the evening she comes home sweating toxins and (literally) turning
> yellow around the edges.
>
> > Look forward to seeing you all the at the next Moot (should I even ask
about
> > moot?).
>
> For some reason the word moot just seems to get used for the moot.
> Think it has something to do with Dobbo, but I've no idea.
>
> BTW Dobbo's awful quiet right now - are we going to see him at the Moot?
>
> > Is it at the Kings Head?
>
> Ye Olde Kings Head in carfax (there is another Kings Head in Horsham,
> someplace).
>
> > What sort of time?
>
> Oh.. from 6:30 or 7ish through to 11 o'clockish.  Obviously there's no
> requirement to be there late if you don't want to.
>
> > Look out for the
> > people with ZZ Top beards wearing Tux hats?!
>
> THere'a a noteable absence of long beards in the LUG.  In fact of the 92
> people currently subbed to the list, I am only aware of 5 people with
> beards of any nature.
>
> > See y'all there.  Well, I'll get back to RFC searching...
>
> See you there...
>
> --
> GJT
> gteale at cmedltd.com
> --
> Recipe for a Pan Galactic Gargle Blaster:
> (1) Take the juice from one bottle of Ol' Janx Spirit
> (2) Pour into it one measure of water from the seas of Santraginus V
> (Oh, those Santraginean fish!)
> (3) Allow 3 cubes of Arcturan Mega-gin to melt into the mixture
> (properly iced or the benzine is lost.)
> (4) Allow four liters of Fallian marsh gas to bubble through it.
> (5) Over the back of a silver spoon, float a measure of Qualactin
> Hypermint extract.
> (6) Drop in the tooth of an Algolian Suntiger. Watch it dissolve.
> (7) Sprinkle Zamphuor.
> (8) Add an olive.
> (9) Drink... but... very carefully...
>
>
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