[Nottingham] “Anonymized” data really isn’t — and here’s why not

Jason Irwin jasonirwin73 at gmail.com
Tue Jan 21 12:03:32 UTC 2014

On 19/01/14 21:28, Martin wrote:
> My personal selection from surfing around the web is:
Hit mainstream media now as well:

People may also find this useful:

One thing worries me about that PDF though. It states:
"I am writing to give notice that I refuse consent for my identifiable

The NHS will claim that their data does not make you identifiable and,
but of course it it does when matched against a pre-existing dataset.
The wording gives them far too much wiggle room. I think the PDF
should say:
"I am writing to give notice that I refuse consent for any information
relating to me to be used for any purpose other than providing direct
medical care."

I actually have no issue with a researcher getting my data to pull out
statistical information, so maybe add an exception in for that as well.

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