[Nottingham] NHS care.data ('Anonymized' data really isn't - and here's why not)

[Martin]

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On 27/03/14 08:40, Jason Irwin wrote:
> On 26/03/14 19:12, Martin wrote: [Missed this bit at the bottom]
>> My personal opinion is that your medical records should remain
>> your personal data... There is huge scope for abuse otherwise...
> I am perfectly comfortable with medical professionals, academic 
> researchers having access in order to do research; for the simple
> fact that I get some benefit too. Heck, I may even be OK with
> pharma companies getting access so they can figure out drug
> interactions (reporting of these by isn't uniform) and other
> issues.
> 
> What I am not comfortable with is it being sold for a profit and 
> especially not to companies who have no need for medical data like
> that...

To my mind, there really does need to be some sort of draconian
company destroying legislation that effectively stops non-medical use
of medical data. However, the corporate lobbying can be expected to
defeat that...

Also note how the SUS data that I believe was collected by our very
own BT is being made use of (sold) over in the USA and conveniently
outside our UK legislation...


What next?

What of the medical profession's oath of confidentiality?...


I'm fully expecting some very uncomfortable abuse for everyone from
all of this...

Martin


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